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NHS England - Approve Translarna NOW!Will and Isaac Baker are brothers, aged 6 and 3, from Colchester, Essex. Their grandparents are active members of The Ark Methodist Church, and Will and Isaac's parents regularly bring Will and Isaac to Sunday School at The Ark. Both boys have a particular strain of Duchenne Muscular Dystrophy. PTC Therapeutics, based in the USA, have developed a drug - Translarna - which is the first drug ever to be developed specifically to treat the strain of Duchenne Muscular Dystrophy which both Will and Isaac have. The drug has been approved in the European Union and in a small number of countries across the world. The drug has also been approved for a 6 month period for a boy in Scotland only last week. It is critical that NHS England approve this drug while the boys still have mobility and meet the prescribing criteria. Will, who is now 5 (his 6th birthday is next week), meets all the criteria to commence treatment immediately. Isaac is 3 yrs 7mths and hopefully will do so on his 5th birthday.48 of 100 SignaturesCreated by Alan Jenkins
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Take action against childhood obesityEvery year one in five children in this country leave primary school clinically obese and set up for a lifetime of poor health and social and psychological issues. Without action thousands more will join them. Jeremy Hunt says this is a "great scandal" and in his first speech after being reappointed Health Secretary following the general election he said "It is something we cannot say that we accept". But far from leading the charge to improve the health of our children, our Health Secretary is sitting on the findings of a crucial review from Public Health England into reducing sugar consumption. 18 months ago Hunt asked Action on Sugar for a plan to prevent childhood obesity. With the help of their global experts they provided a plan with just seven actions but so far Hunt has done nothing. The government promised a child obesity strategy this year. The clock is ticking and every day more of the youngest and most vulnerable children tip the scales into clinical obesity. Sign this petition and together we can force Jeremy Hunt to publish the Public Health England review, respond to the plan presented by Action on Sugar and finally take action on childhood obesity.44 of 100 SignaturesCreated by Lindsey Pearce
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BBC WORKING FOR NHSThe NHS will soon be on its knees. By having the BBC work for the NHS it will help boost the budget of the service that needs to be top of our preservation and improvement list. I am deliberately making this is a brief note because the simple ideas are the best and I do not want to be watering it down by long-winded explanations. In short, get the BBC working for the NHS.37 of 100 SignaturesCreated by Norman Giller
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Publish the sugar reportPublic health experts agree that a high sugar diet is a major cause of obesity, dental caries and other associated problems. High sugar foods are predominantly processed foods, cheap and pushed with advertisements. Education and publicity on their own are not enough to prevail against this. Government prefers that the industry should regulate itself, but no progress is being made that way. This report examined the potential to make progress through pricing and its publication would inform debate over solutions to this great public health issue.9 of 100 SignaturesCreated by David DAWSON
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Disabled access on Plymouth streetsI have been fighting for nearly 2 years to get drop kerbs installed on Cunningham road in Plymouth, to allow access for wheelchair and mobility scooters. I have mobility issues and rely on a scooter to get around, but with no drop kerbs, i cant leave my house. I have been lied to and treated like I don't matter by the council, and put onto a list for a fund that simply doesn't have enough money to do the work, meaning it will never be done. I have been told by the council that they don't have a budget for disability access issues and the only money available is £4000 in the living streets fund, while the work has been quoted as £5000. Why don't the council have a budget set aside for disability access issues? The discrimination act was put in place to prevent businesses from discriminating against disabled people yet the council don't have to do anything about it? I may only be one person asking for them, but not having them means my life is seriously effected as I do not have access to my GP, the hospital, the pain clinic or anywhere else. It is important that the council listen to what it's constituents need, are taken to account for failing to fulfil their job and are prepared for such occurrences with suitable budgets.72 of 100 SignaturesCreated by Hayley Harris
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Stop selling high energy drinks to childrenIt contains too much caffeine in it that can give potential harm to children. It changes the way the heart beats and drinking a can of energy drink is enough to give a child caffeine poisoning. A local shop sold it to my 8 year old daughter who also bought a can for my grandson aged 7 it states on the can NOT to be given to children OR pregnant women, shops are flouting the warnings on the can and still selling it to children of which should not happen, hence why I set up this petition.69 of 100 SignaturesCreated by Sharon Robertson
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Funding for new & safe medication for treatment of schizophrenia & bipolar illness.All current medication for these illnesses are very dangerous, often causing 30k of weight gain. Diabetes, abnormal muscle movements, seizures, hepatitis, disturbance in speech & language. Damage to liver & pancreas, loss of memory.The list is long. Current medication is no more than a tranquilliser or "knock on the head" rendering the sick subdued and helpless. Unable to take part in an active social life or go to work. My daughter was at university when she became ill. She weighed 9 stone or 58k, her life was just beginning. She now takes the only type of medication that is available. She now has no confidence, as not only has she, " lost her mind" she has, "lost her body" too as she now weighs 15 stone or 95k. She has no friends, no social life or a job. The medication she must take is not working, because she has not recovered. This is why it is so important to save young lives by developing new and safe medication for these serious illnesses. Many people with schizophrenia end up in prison, costing the government & tax payers, when they should be taking new, safe, medication & living normal lives. This is a global illness.150 of 200 SignaturesCreated by Jilly Cunningham
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South Devon Cycle LinkThere is currently no safe way to cycle between Totnes and Newton Abbot. The A381 is the only route over the river Dart and it is simply too dangerous for cyclists. Access to footbridge, the only other bridge over the river, would enable cyclists and walkers to travel safely out of Totnes to the north east and west. This would ease congestion and improve the health and wellbeing of the residents of Totnes and Newton Abbot and all the villages that lie between. In addition, this route would serve to complete the missing link in the National Cycle Network. The route in question is called NCN2 and runs from Dover to St Austell. The missing link lies between Totnes and Newton Abbot. However, Devon County Council want to sign off an alternative route that bypasses Totnes altogether. We believe that this is a huge missed opportunity as it will have a negative impact on the town in the form of lost revenue from cycle tourism. Please help support our campaign by asking Devon Council not to bypass our town but to directly liaise with South Devon Railway to appease their concerns regarding security. The bridge was part funded by public money and is a valuable asset to Totnes and its transport infrastructure. However, it is only being used exclusively for customers of the railway and not for the overall benefit of the community. We need the council to help us convince the railway that we can secure their important tourist attraction and that opening up access to the bridge would actually benefit their business going forward. We have had discussions with both South West Water and the only private landowner involved, and neither have any serious objections to our proposal. Our petition has generated almost 3000 signatures, many with comments expressing the importance of the scheme to the local and wider community. What we are missing is support from Devon Council. We do not need another study, we do not need any more consultants, there are no other routes that offer value for money. Our proposal is a valid practical solution with many benefits to the local community in terms of congestion, health and tourism. Our proposal is backed by the community, Sustains, all the local schools, local businesses, local and regional MP's and is backed by South Hams District Council. We appreciate the cycle path will require an estimated £300,000 (although we believe this estimate to be excessive). We are happy to co-ordinate the funding process going forward, however this option will never come to fruition if we don't get agreement in the first place. So please Devon County Council - please don't sign off the National Cycle Network Route 2 so that it bypasses Totnes. Instead please get on side and help negotiate with the South Devon Railway to open up a public resource for the benefit of us all.72 of 100 SignaturesCreated by Nick Oldridge
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Syrian Children AppealI believe this issue is important because we have to whatever we can to save the lives of those that have embarked on these journeys. These children have had to flee their homes in search for a better life and we need to provide some sort of comfort for them. A few Syrian kids were asked What makes you happy? Moiad,8, from Dara'a, Syria said "There is no war here. Reading and playing. Helping my mum." Briksam,9,from Homs, Syria."I like going to school,studying and taking tests.Being with my family." Najam,6,from Homs, Syria. "Toys.When my older brother, Ahmed, comes to visit." These Children only want one thing , to live their lives as normal children and this is something they should be able to experience in a free world and not caught in the middle of war. We must remember that although their homes have been taken , we need to ensure their futures are not taken away from them. To find out more go to www.unicef.org.uk5 of 100 SignaturesCreated by Fiyin Fagbohun
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Providing HIV education in schoolsThis is important not just for prevention but also what having HIV actually means and what it entails. We as a nation are far too unaware of what having HIV actually means and how it is transferred.2 of 100 SignaturesCreated by Paul Duncan
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Remove the Pink Ribbon Blindfold and ask the Big Question.This October we urge women and men to join us in removing the pink ribbon blindfold and in asking Breast Cancer Charities to do the same. Why, despite all the money raised, are more and more of us are getting this disease? Is it possible that we’re not being given the full picture on the breast cancer epidemic that has taken us from 1 in 12 chance of a woman getting the disease in her lifetime in 1995 to a 1 in 8 chance today? Why are Breast Cancer Charities refusing to acknowledge the environmental and occupational risk factors for breast cancer, when the evidence is already out there? ALL women need and deserve a full understanding of ALL potential risk factors for the disease that threatens women’s lives and health. Now is the time to question why Breast Cancer Charities continue to focus solely on ‘lifestyle’ risk factors such as diet and exercise, while ignoring the potential 60% of breast cancer cases for which they have no explanation. What about the role of chemical, environmental and occupational exposures in this? Why, when the World Health Organisation states that prevention (which is not the same as early detection) offers the most cost-effective long-term strategy for the control of cancer, do we not see this reflected in our cancer plans and strategies? Why is primary prevention (stopping the disease before it starts) not equally addressed along with better treatment and care? Why are those with the power to influence decisions on breast cancer policy not acting on what we already know? Join us this October in removing the pink ribbon blindfold and asking the Breast Cancer Charities the Big Question: WHY they persist in refusing to acknowledge the role of environmental and occupational toxins by ignoring decades of evidence up to the present day on the link between our lifelong (womb to grave) exposures to toxins and the escalating incidence of breast cancer? Actions: There are various actions you can take: 1. Join us in removing the pink ribbon blindfold on the 1st of October for the social media launch of our campaign. Do your own action in a group or individually - take a photo removing the blindfold and share on your Facebook page or via social media twitter - @pink_prevention Instagram - pink_to_prevention Flickr group - From Pink to Prevention. 2. Sign our petition, and share widely. 3. Get your organisation to sign up to our statement - www.frompinktoprevention.org 4. Write to your Breast Cancer Charity to ask them the big question. Please send us a copy of their response. See a sample letter on our website. www.frompinktoprevention.org 5. Visit our Facebook page for poster to share: https://www.facebook.com/FromPinktoPrevention 6. World Health Organisation Asturias Declaration: http://www.who.int/phe/news/events/international_conference/Call_for_action_en.pdf 7. For more information on the evidence linking breast cancer and environmental and occupational risk factors: http://www.frompinktoprevention.org/resources/scientific-evidence/ 8. Pink Ribbon Blindfold picture Copyright to Mark Chilvers, thank you to Unison for the use of the picture. Concept by Helen Lynn.18 of 100 SignaturesCreated by From Pink to Prevention
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free precriptions, education and health careThe sick and infirm are going without care because they can't afford it due to the fact that, during their WORKING lives, they saved for their retirement. These same people are paying through the nose for their medication whilst trying to exist off the meagre pension the government gives them, currently the third worst pension in the EEU. Students worry about hanging a millstone around their necks in the form of student loans. There are thousands of overseas students attending UK universities, why not charge them a little more to subsidise our students. They are our future and should be fully supported.3 of 100 SignaturesCreated by ROBIN HIGHAM
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