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To: Rt Hon Liz Kendall, Secretary of State for Work and Pensions

No more PIP reassessments for people with Lifelong Disabilities & Terminal Illness

We want Liz Kendall, MP to do what 5 Tory Prime Minister's refused to. 
A disabled person with a lifelong disability, condition or Terminal illness that will not get better or diminish, should not have to go through Light Touch Reviews at 10 years. If someone cannot self-advocate, they can be taken advantage of, be manipulated. Medical Consultants give enough evidence through their reports that 10 year Light Touch Reviews are un-necessary. Danny is Certified Sight Impaired, On the DeafBlind Register, cannot use phones or fill in forms, yet we are still being told that they will need a Light Touch Review at the 10-year mark, HOW? And terminally ill people need to be fast tracked & the current system is too slow, people are dying before they are in receipt of benefits!

Why is this important?

Young people and Adults with special educational needs and a lifelong disability cannot self-advocate, nor can we rely upon the system to protect them. Advocates and social workers come & go, we need to address the shortage of social workers in the SEND system. These genuinely disabled and terminally ill people are not 
work shy, they are being told that despite evidence to the contrary they must work, or that they don't qualify. They cannot defend themselves and quite frankly, our government should be doing its level best to protect them, instead poorly qualified assessors employed by US companies, who are profit driven are in charge of assessment. Assuming everyone is a criminal & treating genuinely disabled & terminally ill people like this is unacceptable! Terminally ill people need to be fast tracked as soon as they are diagnosed!

How it will be delivered

We’re hoping that our local MP will deliver it for us.

Category

Updates

2019-02-11 03:05:25 +0000

44,034 Signatures! Absolutely phenomenal guys! We thank you from the bottom of our hearts, it's 3 am, I couldn't sleep, I have a condition called symphysis pubis dysfunction, which basically means the ligaments that are supposed to support my pelvis are long, straggly and weak instead of fat, short and strong. (at any other time in my life, I'd wish the opposite for my body lol) but this means that my pelvis is unsupported, so the bones move around a lot, mega painful. Then if you add osteoarthritis and fibromyalgia to that mix too, well you guys who know the pain of these conditions will understand, my wonky hips woke me, too painful to lie down, too painful to sit etc. but as I'd already woken hubby several times. I'm downstairs now so that he can get some sleep without me bothering him :-) Wow, you guys are so awesome. Thank you. We're going into day five and I predict we'll be at 50,000 before we know it. <3

2019-02-10 00:39:41 +0000

31,857!!! Whoop, whoop de do!! Did you know that you can request an assessor of the same gender as the person being assessed and they cannot refuse? I didn't, this is new information to me and valuable. Had I known, I would have insisted that our daughter was seen by a female assessor, not the overbearing, obnoxious, Dickensian guy we were sent instead. There are some people that this type of assessment is not suited to, this guy was in the wrong job!

2019-02-09 13:20:40 +0000

When our daughter was assessed, there was more than enough documentation in the way of evidence, i.e. reports from medical professionals. The PIP assessor didn't even bother to contact our doctors, so word of warning guys, get reports printed off by your GP, have them ready and make copies so that you have them for the future. You may have to pay for these, but it should only cost a few pounds.

2019-02-09 10:16:42 +0000

Did you guys know that if you can't manage to get to an assessment centre, you can make a request to be seen in your own home? Also, please do not be intimidated by these people, if they talk too fast, or you don't comprehend what they say, you're within your rights to ask them to slow down, give you enough time to think and then answer the question.

2019-02-09 10:12:03 +0000

21,106 signatures!!! If you can imagine 'the' most excited child on Christmas Day, you will be somewhere near how happy we, the Bell clan are as a family right now at your AMAZINGLY AWESOME response to Holly's petition! It's only been a few days. You guys are the BEST! Did I say thank you yet?? Thank you!!! Please keep signing and sharing, this isn't just about Holly, it's about ALL of you guys, every person who's been assessed by a person who made you feel less than you are. We are not LESS, we are an UNSTOPPABLE force :-) <3 <3 <3

2019-02-09 08:39:49 +0000

20,000 signatures reached

2019-02-08 19:21:16 +0000

A lovely friend of ours (Thank you Helen) just called to thank us for doing this, her son has similar disabilities to Holly, it shouldn't be this hard, for anyone! We're not just doing this for Holly, we're doing it for everyone who has a lifelong disability that is being ignored.

2019-02-08 19:16:44 +0000

You guys are AWESOME!!! Thank you! We reached the 13,000 Mark! Yay! We are humbled, we realise that there are so many people out there who really do care, not everyone knows how this affects families, the disabled, or their carers. THANK YOU! Holly still can't believe it!

2019-02-08 17:22:53 +0000

I'm reading your messages guys and I'm heartbroken that so many people are being hurt by this cruel government that employs a company from a foreign country (USA) who employs people who are not qualified to assess, or have no moral compass when assessing. My heart aches.

2019-02-08 17:16:07 +0000

11,205 Signatures!!! You guys are restoring my faith in Human Nature, in the UK, our government is deeply flawed, they are wealthy and don't know what it means to rely on Personal Independent Payments or Universal Credit etc. Keep going guys, sign and share. You are blowing my mind xxx

2019-02-08 15:47:47 +0000

10,000 signatures reached

2019-02-08 15:35:32 +0000

Yay and whoop whoop de dooo! We are almost at 10,000, we are so very grateful, amazed and astouned, literally, our daughter is so happy that people have taken this petition to their hearts, she feels like she has an army of people rooting for her and so do we :-) <3 <3 <3

2019-02-08 08:54:03 +0000

5,000 signatures reached

2019-02-07 19:43:31 +0000

1,000 signatures reached

2019-02-07 14:43:28 +0000

Oh my goodness, 507 signatures! You guys are absolutely a mazing!!!! One very happy daughter! <3 <3 <3