100 signatures reached
To: Health Minister
Raise awareness of N.E.A.D.
Wider recognition of the condition 'Non Epileptic Attack Disorder' by publishing information.
More specialist training for Neurologists.
Better G.P. awareness.
Funding for support groups.
Acknowledge the role played by Carers.
Register sufferers entitlement to DLA or equivalent benefit.
More specialist training for Neurologists.
Better G.P. awareness.
Funding for support groups.
Acknowledge the role played by Carers.
Register sufferers entitlement to DLA or equivalent benefit.
Why is this important?
There are up to three in one thousand people currently suffering from NEAD.
It is a very debilitating condition, and one that usually means the person requires a carer 24 hours a day. There is typically a long delay in getting a diagnosis, which is partly due to insufficient knowledge, both of GP's and Specialists, but also a tendency for the condition to be labelled a 'pseudo' condition, that is, an assumption that it is not really a medical condition. This condition affects both men, women and children, and as awareness slowly increases, partly through the efforts of self funded groups such as the NEAD Trust, based in Sheffield, more and more cases are being confirmed.
There is no official national organization, and in most cases, no local support.
Sufferers, and their carers often have great difficulty in obtaining their benefit entitlements, and in some cases are suffering severe hardship and well as being marginalized by the health service and others.
When you are caring for someone who may have multiple fits each day, causing falls, injury, loss of memory and the inability to carry out normal activities of daily living, it can take it's toll on both sufferer and carer. All we ask is that the condition is better publicized, that health professionals are better trained to diagnose and support sufferers, and a health service funded external national support organization is set up to help with ongoing advice and support. Thank you.
It is a very debilitating condition, and one that usually means the person requires a carer 24 hours a day. There is typically a long delay in getting a diagnosis, which is partly due to insufficient knowledge, both of GP's and Specialists, but also a tendency for the condition to be labelled a 'pseudo' condition, that is, an assumption that it is not really a medical condition. This condition affects both men, women and children, and as awareness slowly increases, partly through the efforts of self funded groups such as the NEAD Trust, based in Sheffield, more and more cases are being confirmed.
There is no official national organization, and in most cases, no local support.
Sufferers, and their carers often have great difficulty in obtaining their benefit entitlements, and in some cases are suffering severe hardship and well as being marginalized by the health service and others.
When you are caring for someone who may have multiple fits each day, causing falls, injury, loss of memory and the inability to carry out normal activities of daily living, it can take it's toll on both sufferer and carer. All we ask is that the condition is better publicized, that health professionals are better trained to diagnose and support sufferers, and a health service funded external national support organization is set up to help with ongoing advice and support. Thank you.
