We need Jeremy Hunt MP to get NHS England to fund Vimizin for Morquio sufferers
To fund Vimizim for Morquio sufferers as the trial has now finished which has proven successful.
Why is this important?
It gives Morquio sufferers a better quality of life and prolongs their lives. It is vital.
Our 6 year old son Harvey suffers from Morquio and as desperate parents along with all other Morquio sufferers, we really need this drug funded. NHS England could not come to a decision about funding and passed the buck to NICE.