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Help Murray and others like him: Make medicinal cannabis available on the NHSMy 5 year old son Murray has Doose Syndrome / Myoclonic Astatic Epilepsy (MAE). This is a rare form of epilepsy and means he lives with up to 600 seizures a DAY (4 different seizure types). He has spent months lying in a hospital bed shaking, now uses a wheelchair and has only been able to attend school for 3 weeks this year! It is very hard to control with the medicine currently available and it has been proven in other countries that medical cannabis helps people with illnesses like his. In the USA medical cannabis has helped stop the daily aggressive seizures that children with this syndrome have. The government needs to make Medicinal Cannabis legally available so that the NHS can administer it safely and change the lives of thousands of people with illnesses that could be helped by it. Thanks to the thousands of people who signed this campaign so far, Murray has now been granted a special licence to be prescribed CBD, he's the first person in Scotland to get one. But this campaign is about more than just one patient, it's about doctors being able to give all patients the medicine that could help them.243,301 of 300,000 SignaturesCreated by Karen Gray
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Let The Children PlayNatural Foundations is a not for profit organisation giving families a unique place to play imaginately together in all weathers. Come rain or shine, from mud stomping to sand castle building we open! We welcome families from all over Essex and beyond and are accessible to most at £4 for the day-we never turn a family away. Unfortunately Chelmsford City Council do not see the same benefits for children as our parents do and completely out of the blue they have given us 12 weeks notice to leave the land with no offer of other land or possible extension. Despite the outrage from the 8,000 families who visit us, the council have refused to give us any flexibility. This doesn't give us enough time to find another site and this doesn't give us enough time to raise the funds we need to move. We need the summer. Publicly the council have said we have until the end of May, yet our notice states the 10th. Publicly, they have also stated they will give us every bit of help they can, yet this is not happening. We ask the council to be more clear with the public and to give us some flexibility and allow us to stay longer. Please help us by signing this petition to ask the council to either rethink the notice or at least give us more time before we have to leave. Here are some comments from the families who visit us: 'So disgusted by Chelmsford council. Natural foundations has been such a big part of my son's little life. There is no sense to this. The ideas hub in town was priced out of their premises and now another invaluable place for families is under threat. Makes me so sad.' 'If we can do anything to help, please let us know. Us mums are powerful and passionate people, especially where our children are concerned' 'Me and my boys love this place. I always feel so lucky when we go that we have this wonderful resource on our doorstep. It’s so much nicer and more educational than the soft play indoors.' 'I love taking my son here, yet again the council pulls the plug on something that's non profit and great for children's development. I thought they were meant to be supporting children being outside and doing outside activities?' 'I am really, really angry to hear this. I love coming to Sandford mill for your natural foundations. It's educational and a beautiful natural environment for the children to learn and develop their skills with facilities for parking and toilets aswell as plenty of land for picnics. This is just ridiculous everything nice seems to be moved or taken away this is one of the best assets which doesn't cost a fortune in Chelmsford for children.' 'This is really sad. Natural Foundations is absolutely fantastic - the children simply love it as do us parents so I'm keeping everything crossed that you find somewhere suitable - good luck' 'Would be absolutely devastated if we lost Natural Foundations! What you’ve created is just magical! xx' 'You are amazing - we moved home to London and still try to get to you as often as we can. Really hope this situation is either resolved or that you find somewhere even better' 'You make so many children so happy and what you do is wonderful. I cannot believe the council have done this it’s outrageous'1,220 of 2,000 SignaturesCreated by Jo Cope
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KEEP BLUEWAVE HYDROTHERAPY POOL AND GYM COMPLEX OPEN for the disabledThe Bluewave hydrotherapy Complex is a specialist facility that serves the most vulnerable and marginalised members of our community - namely the disabled and elderly. There is no facility in Kent that offers the equipment and service that this complex can offer, such as the hydrotherapy pool, specialist weight training and cardiovascular equipment and pain management classes. This space is a social hub that provides some of the more vulnerable members of the community with a place to converse, improve their health and interact with others. The complex receives exercise referrals from the NHS and is also used by a number of special needs and state schools. The loss of this facility would be devastating for the local community! Please can you sign the petition so Bluewave can remain open and continue providing this crucial support to our community.1,840 of 2,000 SignaturesCreated by Michelle Moore
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Save Priorswood LibraryThis library and its staff provide vital services to one of Somerset's most deprived areas where community assets are already scarce. Not only is this an essential information and communication resource but it also contributes significantly to health, wellbeing and social life, in particular for the considerable number of residents with limited mobility, especially older, disabled, and low-income residents.191 of 200 SignaturesCreated by Mark Wood
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Stop funding cuts to the Citizens Advice BureauThe Citizens Advice Bureau provides vital benefits advice and support to ill, disabled and vulnerable people in and around Boston and Skegness. Lincolnshire County Council have decided to cut funding for this valuable service. There is no other organisation that provides the same service. Please sign and share.1,822 of 2,000 SignaturesCreated by Gina Lewis Beever
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Save Whitdale elderly day centreOver 300 people currently attend one of the day centres facing closure. Most of the users are frail and many suffer from dementia. Being able to meet up with friends means people are less isolated and are able to stay living in the community for much longer. If these services go people may not be able to live independently for as long as they would like to and may be forced into more costly residential care. These centres provide a vital service to the local community and the council should keep them open and fight against government cuts to the council’s budget.685 of 800 SignaturesCreated by Gavin Beurskens
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Save Alistair’s sleepover staffBecause Alistair has profound learning disabilities, epilepsy, schizophrenia and severe autism. He has no awareness of danger and an unstable gait, meaning he is very likely to fall and cause serious injury when not supported. Alistair will also self harm and become aggressive when he feels nervous and doesn’t have someone there to help him and make him feel safe.1,862 of 2,000 SignaturesCreated by Lyndsey Forrest McColl
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Change Those Trolley’s!By providing trolley’s in such disrepair it demonstrates a lack of respect for SEND families. They are a health and safety hazzard and they represent a total disrespect and lack of provision which reflects badly on the businesses that operate there. They ignore the rights of disabled children to be able to sit safely and comfortably, access the facilities there and be treated equally. The facilities for disabled adults are adequate so why not show the same respect for our disabled children. I have asked for 3yrs for these trollies to be replaced or repaired but have been ignored or excuses have been made. Enough is enough now and parents of disabled children what to be listened to and our children treated with respect they deserve.109 of 200 SignaturesCreated by Jen Crawley
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Reinstate the Funding to Derbyshire Unemployed Workers' CentresThe Derbyshire Unemployed Workers’ Centre (DUWC) received a grant of more than £41,000 annually and a further £50,000 from Public Health to carry out tribunal representation work for people challenging decisions by the Department for Work and Pensions regarding benefit reductions and withdrawals. But the funding from the County Council will come to an end on March 31. Colin Hampton, co-ordinator of the centres for the past 33 years, said: “DUWC, irrespective of who is in government, gives a voice to those who come to seek our help." “You would think those in power would welcome this feedback but it appears that this authority would rather not hear what they have to say." “The centres have many funding streams and even more supporters. We will be embarking on a massive fundraising campaign to bridge the gap left by the Council’s cynical move.” Thousands of Derbyshire residents use the service, which has offices throughout the county. It also comes at a time when the centres are dealing with the full digital roll out of universal credit. Please visit our website for more information about the service: http://www.duwc.org.uk/2,726 of 3,000 SignaturesCreated by Derbyshire Unemployed Workers' Centres
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Rescind the Governing Body Decision to downgrade Corby Urgent Care CentreIf this erroneous decision is not rescinded then it would create a two tier urgent care system that would exclude, workers, visitors and those that participate in the full range of sporting fixtures that happen in the area from accessing and using the urgent care centre: putting untold pressure on KGH A&E and the East Midlands Ambulance Service.1,544 of 2,000 SignaturesCreated by Lyn Buckingham
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Stop anonymous tip offs to the DWPOver the year 2016-2017 nearly 174,000 allegations were closed and 149,450 (86%) of tip offs were incorrect allegations. Over the financial years 2015-2016 and 2016-2017 332,850 cases were closed following reports by members of the public (of benefit fraud). Of these 287,950 were found to have no or little evidence to substantiate the claim (87%) We need to stop the culture of hunting out benefit fraud, as most of the time the allegations are incorrect. Going through this process has a detrimental effect on disabled and chronically ill people’s mental and physical health. We believe that if the public are to remain involved in reporting on alleged benefit fraud then they should not be allowed to do this anonymously and should have to give at least their name and national insurance number. This will help to make people think about their actions before picking up the phone, will help to reduce bogus allegations, and will make improvements to this culture of thinking people on benefits are scrounges and that disabled/chronically ill people are faking (when in fact they are probably faking being well most of the time). If someone is found to be a serial malicious reporter then they should be fined and banned from giving tip offs again. The general public have a slim view and understanding of what disability/chronic illness ‘looks like’ resulting in more reports of benefit fraud and disabled/chronically ill people being scared to leave the house for fear they’ll be reported increasing isolation in communities and fears that your neighbour is spying on your every move. Let’s stop feeding this narrative. Please help us make some positive changes to the benefits system. Together we rise! Faye Dempsey, Ellie Hicks, Alison Morton Articles of interest: www.theguardian.com/commentisfree/2018/feb/01/spy-on-your-neighbour-britain-demonisation-benefit-claimants-disabled-people www.independent.co.uk/news/uk/politics/benefit-fraud-public-tip-offs-legal-action-police-no-evidence-dwp-work-pensions-department-a8144096.html491 of 500 SignaturesCreated by Faye Dempsey
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Save Morley House Respite Unit!In King's Lynn, one of only two local residential respite units which supports many children with disabilities and Complex Needs has been earmarked for other usage. The remaining unit has only four beds and cannot accommodate all the children affected by this decision. Although Norfolk have a legal obligation to provide short breaks for disabled children, the council has still decided to shut it down. Residential Respite such as Morley House is essential to the well-being of these disabled children (who have already been assessed as needing the highest level of support) and their families who depend on the time to give other siblings or family members support, and access parts of everyday life (such as shopping, medical appointments and household maintenance it is difficult or impossible to do safely while caring for their disabled child). They allow children to make friends and try activities and days out which other children take for granted. Without access to Morley House, many of these children will be denied what every child should have, a life with friends where they can enjoy experiences in a safe environment with people who can understand and support them. In addition to the use as a residential respite unit, Morley House is also used to house educational boarders from the local Complex Needs School. This provision is part of their education. For my family and many others Morley House is a lifeline, the only place we know our child is safe and well looked after which enables us to relax and meet the needs of our younger child and give her the everyday experiences we cannot safely provide while caring for our older daughter, daytrips to the beach or even visits to the homes of family and friends are impossible apart from the times our older daughter is in respite. We need your support to reverse this decision and ensure our children and the many children who will come after ours still have access to this essential service.3,406 of 4,000 SignaturesCreated by Jessica Kibble
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