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For cortisones sake ! give steroid dependents the life saving injection they needPeople are dying. Adults teenagers and children. My daughter Molly was diagnosed in 2013. Our life saving injection consists of 3 pieces. A glass vial containing liquid medicine. A syringe. And a 2 inch needle. Patients are expected to draw up the medication in a syringe, attach a needle and then intramusculary inject it into the thigh. All whilst going into a coma because their organs are shutting down. This is not acceptable. My daughter cannot do this. Others have failed too, some resulting in death. Schools and workplaces will not give the old fashioned style injection leaving patients with their lives in the balance. Since I started this petition hundreds of adrenal patients have died. I now have a pharmaceutical company and a pen developer. We just need the British government to help us make this happen. This below is the original text. My little girl who is 14 has been diagnosed with hypopituitarism, thus meaning her pituitary gland is not working affecting many glands in her body. The most serious being her adrenal gland, she is now cortisone dependent which means she needs to carry a life saving emergency injection everywhere she goes. Because this condition is quite rare there is not a quick pen injection like the epi pen or diabetes pen. This means that in a time of crisis a small glass bottle containing cortisone is snapped opened a syringe is drawn up with the medication, a sterile needle is taken out of the packet and then attached to the said syringe. This is then injected intramuscular in to the leg. I am very sure that my little girl in a close to unconscious state would not even be able to take the top off the little glass tube let alone draw it in to a syringe and then inject it in to herself but this is what she would HAVE to do to save her own life if she were alone. I'm terrified to let her out of my sight. Even I worry that in this situation as a parent I would not be able to calmly do this. I know many other mothers and sufferers also feel this way, it seems that it is not viable because there are very few people with this condition which gives the impression that their lives are not as important as those who suffer with diabetes or fatal allergy sufferers. Ultimately I would like my little girl to finally have a normal life, she has suffered with very poor health for the past 14 years, she has gone through so much and come through so much I think now she deserves the right to a more healthy life with the safe knowledge that no mistakes can be made in saving her life in an emergency situation. She needs to fly the nest eventually like her brother and sisters will, she cannot go out in to the big wide world by herself without an easy to use pen, consider if this were yourself or a family member she deserves the right to an independent life. This injection pen could mean life or death to all of these people. Please consider listening to my plea, I will do anything personally in my own power to make it happen, everyone deserves the right to life. All other petitions and campaigns have fallen on deaf ears. So please everyone get behind me and show your support. Using a 3 three year olds words (her words) 11 years ago whilst suffering double pneumonia in hospital on Christmas Eve. 'Mummy its not fair any more like this' It hasn't been fair since then with her health and this situation is not fair either, her words may be in the right places now but she is still my little girl and i love her so much. Please listen this time Yours sincerely Rachel Pegler. IMPORTANT INFORMATION FOR NON UK RESIDENCE please sign this one they will all be counted together http://www.change.org/petitions/pharmacutical-companies-health-chiefs-develop-a-life-saving-injection-pen For more info on how you can help click here https://www.facebook.com/rachelpeglersavinglivesforsterioddependants?notif_t=page_new_likes http://www.change.org/petitions/pharmacutical-companies-health-chiefs-develop-a-life-saving-injection-pen# A MESSAGE PLEASE READ From Audrey another mum from Northern Ireland who's daughter Victoria suffers from Addisons, we are in this together now all of the way . please sign for her too and many others like her, ' I know some of you have already signed this petition and I'm extremely grateful. If you haven't already signed and shared it will only take 30 seconds of your life to add your name to this petition. Many of you know my daughter was diagnosed with Addison's Disease last year along with a few other illnesses. It is a life long and life threatening condition. She relies on family members to inject her if she goes into Adrenal Crisis, but this isn't a straight forward ready made injection..it consists of a syringe, 2 needles and 2 vials...would you be comfortable preparing that and injecting your loved one when they are dying in front of you. I've no doubt it will be extremely hard to keep my emotions at bay and think clearly. Victoria isn't well again, we're waiting on further test results to see what is happening with her body now. Although this petition isn't Victoria's story, this young girl needs the same treatment. Please sign and share this to try and get an epi-pen manufactured for people like Victoria and Molly. Many thanks23,584 of 25,000 SignaturesCreated by Rachel Pegler
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Stop government-specified internet filtering and search blacklistingAs you may be aware, there are already numerous methods of blocking access to pornography where parents wish to do so. A block at the ISP level takes what is and is not blocked out of the control of parents, with potentially dangerous results. Video chat sites aimed at teenagers and certain social media sites are (as identified by the Child Exploitation and Online Protection Centre, CEOP) some of the places paedophiles go to prey on children, but as these are not 'adult' in nature they will most likely not come under the block. Parents being told their internet connection is being filtered for adult content to protect their children will therefore believe their children are 'safe' when they are in fact being left exposed to serious risks. The emphasis should be on educating parents about dangers like these, helping them to set up their own restrictions so their children are protected, and highlighting the fact that no blocking software or filters are a substitute for parental supervision. Restricting access to information based on blacklists and filtering at the ISP level represents a severe curtailment of civil liberties. Such practices are typically employed by governments wishing to restrict access to information and ideas they find threatening or undesirable (the aforementioned People's Republic of China being a good example). Prime Minister Cameron took the opportunity to also state that certain 'extreme' fantasy material (involving no illegal acts) would now be made illegal in all of the UK, signalling his intent to restrict access to material that is currently legal. Sure enough, one week later it was revealed that the ISP filtering may cover far more than just pornography; categories of materials that may be blocked include violent material, extremist related content, anorexia and eating disorder websites, suicide related websites, alcohol, smoking, and even web forums and so-called "esoteric material" (see http://www.wired.co.uk/news/archive/2013-07/27/pornwall). I would urge you to carefully consider these points when and if these issues are debated in the house. The CEOP previously identified other priorities for protecting children from abuse such as finding ways to monitor hidden and encrypted networks, and greater inter-country law enforcement cooperation. I believe these approaches should be selected in preference to the measures mentioned by the Prime Minister, measures that will ultimately fail to catch the most serious perpetrators and are themselves open to serious abuse.869 of 1,000 SignaturesCreated by Mark O
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Public inquiry into the implications of GCHQ's 'Tempora' programmeGiven the recent revelations about GCHQ's 'Tempora' programme UK citizens are facing the greatest threat to their civil liberties in this country's history. Indiscriminate surveillance is being collected on the populace on a massive scale with no public mandate or accountabilty. This is being allowed through a legal loophole which would have been legitimised with the Snooper's Charter. If this kind of system is allowed to exist at all at the very least it should have a mandate from both the public and parliament - with external accountability and auditing. No publicly accountable body currently exists to audit this programme.4,478 of 5,000 SignaturesCreated by Dave Miles
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Charity should be charitableBoaters who move every fourteen days are acting legally and should be left in peace. No one should have to endure the fear and trauma of being needlessly threatened with homelessness. No charity should be in the business of harassing and threatening members of the public, and boaters should have the same rights as all other travelling people. It is not an acceptable use of public money to spend it taking people to court to try and take their homes from them. Many boaters are retired and have limited funds. There are boaters who are key workers and cannot afford to live in regular accommodation. Some boaters are disabled, others have families. Those who move every 14 days are entitled to live and travel on the canal, and do so perfectly legally, yet The Canal & River Trust harasses such people regularly. They threaten to take away the boat license, then to take the boater to court and take their boat from them. If your boat is your home and your only major asset, this is a terrifying prospect. If they take your boat, they can sell it for a profit and you get nothing. The Canal & River Trust pressures liveaboard boaters to take permanent moorings. Most moorings do not have planning permission for residency, so if you live on your boat, a mooring is mostly something you cannot use. The Canal & River Trust owns many of the available moorings and benefits financially from pressuring boaters into taking moorings. In other circumstances, using threats to pressure someone into paying you for something they do not really need and cannot use, just to avoid some threatened outcome, is called a protection racket. This hardly seems like good, charitable activity.323 of 400 SignaturesCreated by B Brown
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Raise awareness of N.E.A.D.There are up to three in one thousand people currently suffering from NEAD. It is a very debilitating condition, and one that usually means the person requires a carer 24 hours a day. There is typically a long delay in getting a diagnosis, which is partly due to insufficient knowledge, both of GP's and Specialists, but also a tendency for the condition to be labelled a 'pseudo' condition, that is, an assumption that it is not really a medical condition. This condition affects both men, women and children, and as awareness slowly increases, partly through the efforts of self funded groups such as the NEAD Trust, based in Sheffield, more and more cases are being confirmed. There is no official national organization, and in most cases, no local support. Sufferers, and their carers often have great difficulty in obtaining their benefit entitlements, and in some cases are suffering severe hardship and well as being marginalized by the health service and others. When you are caring for someone who may have multiple fits each day, causing falls, injury, loss of memory and the inability to carry out normal activities of daily living, it can take it's toll on both sufferer and carer. All we ask is that the condition is better publicized, that health professionals are better trained to diagnose and support sufferers, and a health service funded external national support organization is set up to help with ongoing advice and support. Thank you.343 of 400 SignaturesCreated by David J Passmore
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Ilford Police: Stop stealing from the homelessIlford police ran co-ordinated raids on homeless people in Redbridge on the night of the 23rd of May. One of the men targeted, Adam Jaskowiak, reported that the police swooped in on the group he was sheltering with, bundling all their belongings into the back of a car: “They were just taking the sleeping bags and chucking out everything. I asked to keep it and the food, but they said ‘no’. I just grabbed as many of my things as possible and put them into a bag and ran.” Ilford chief inspector John Fish has been quoted as follows:- "The public rely on police to reduce the negative impact of rough sleepers.' This strongly suggests that Chief Inspector John Fish sees Rough Sleepers as something other than 'the public', and the actions of the Ilford Metropolitan Police, in confiscating these items, are surely the most despicable form of bullying - taking from those who have nothing. Indeed, Chief Inspector Fish states, with no apparent regret, that:- 'This includes the need for us to assist in the removal of temporary structures, tents, and bedding from public spaces and other inappropriate locations.' It is reported that nine of the men were taking refuge in the former Ilford Baths - do Chief Inspector John Fish and the Metropolitan Police realise that rough sleeping is not a lifestyle choice? Where would they suggest these men sleep? The police claimed they carried out this raid in the name of public. Well, we are the public - so let’s show them this isn’t what they want. Sign the petition now and help make sure nothing like this ever happens again.4,281 of 5,000 SignaturesCreated by Nick Gall
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Call for a public enquiry into the death of Alexander LitvinenkoUK coroner Sir Robert Owen, under pressure from Foreign Secretary William Hague, has said a legal inquest will exclude material implicating either Russia's state agencies or the UK security services. Seven years after the death of her husband, Marina Litvinenko is no closer to knowing the truth about his death. This is a travesty of justice at the heart of Westminster and a disgrace to the people of Britain. Many other lives were also put at risk - in London, Moscow and Hamburg and on planes and vehicles in which the Polonium was transported. The public deserves an answer too. see: http://www.bbc.co.uk/news/uk-22579463 http://www.guardian.co.uk/world/2013/may/17/alexander-litvinenko-widow-slams-william-hague?INTCMP=SRCH261 of 300 SignaturesCreated by Susan Cullinan
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Public inquiry into police and state agency response to domestic violenceRefuge supports a number of families who have lost loved ones to domestic violence. Rachael Slack and her two-year-old son Auden were killed by Rachael’s ex partner Andrew Cairns in June 2010, after Rachael had reported Cairns to the police for stalking and threatening to kill her. Derbyshire Police failed to tell Rachael that she and Auden were at high risk of serious harm or homicide from Cairns. An inquest found that police failures contributed to Rachael and Auden's deaths. Maria Stubbings was murdered by her former partner, Marc Chivers – a man already known to the police for killing a previous girlfriend – in December 2008. In the days leading up to her death, Maria called the police to ask for help, but none came. When the police attended the house, they took Chivers at his word when he told them she had gone on holiday. By the time they carried out a thorough search of the house on 19th December, Maria was already dead. The IPCC found that Essex Police made a catalogue of failures in their response to her. Rachael Slack and her two-year-old son Auden were killed by Rachael’s ex partner Andrew Cairns in June 2010, after Rachael had reported Cairns to the police for stalking and threatening to kill her. Derbyshire Police failed to tell Rachael that she and Auden were at high risk of serious harm or homicide from Cairns. An inquest found that police failures contributed to Rachael and Auden's deaths. Sabina Akhtar was stabbed to death by her husband in September 2008, two months after she told the police he had assaulted her and threatened to kill her. Malik Mannan had been arrested less than a month before her death for assault, but the CPS released him without charging him. Social services had received three separate referrals relating to Sabina and her two-year-old son – but closed the case without even doing an initial risk assessment. An inquest found that serious failings had been made by Greater Manchester Police, Manchester Social Services and the Crown Prosecution Service which may possibly have contributed to Sabina’s death. Cassie Hasanovic was killed by her estranged husband in front of her two young children as she attempted to flee to a refuge. An inquest into her death found that Kent Police had failed to arrest Hajrudin Hasanovic for breaching his bail conditions, and that the CPS did not take a number of steps to safeguard Cassie’s life, including failing to apply for Hajrudin’s bail to be withdrawn and failing to inform Cassie of the special measures that might have been available to assist her in giving evidence against him. The inquest also found that Sussex Police officers were inadequately trained in domestic violence. Numerous investigations into the handling of domestic violence have shown recurring failings across the country. Many women using our services also tell us that they feel completely let down by the police, and other state agencies. We urgently need a public inquiry to investigate why these failures keep happening. Individual reports put the spotlight on individual police forces and local agencies – but no-one is looking at the national picture. A public inquiry will make links between different cases and help improve the state response to domestic violence across the country. Refuge, along with families who have lost loved ones to domestic violence, are determined to create real change - for Maria, Rachael, Sabina, Cassie, and countless other women. Please add your voice to this campaign. Find out more about domestic violence and our campaign for a public inquiry at http://refuge.org.uk/publicinquiry56,614 of 75,000 SignaturesCreated by Maria's family and Refuge
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Bank of Ireland - DO NOT change interest differentials on Tracker MortgagesAffected borrowers will pay substantially more than they believed they would be paying. If one lender is allowed to get away with changing mortgage terms in this way what's to stop other mortgage lenders copying them? You may not be affected by this change but stopping Bank of Ireland might prevent your mortgage lender imposing unfair terms on your mortgage in the future. No borrower with a tracker rate mortgage can afford to allow Bank of Ireland to get away with this.243 of 300 SignaturesCreated by Mark Alexander
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William Hague: Tell me how my son diedFor two and a half years we have been trying to find out the circumstances surrounding the death of our son, Andrew, in France in September 2010. Throughout the process of organising a post mortem, trying to work with the French authorities to understand what happened, and trying to work with the Foreign Commonwealth Office we have been faced with many struggles and barriers in gaining access to all the answers we, as a family, need about Andrew’s death. We are currently at the third stage of appeal, desperate to understand the circumstances of our son’s death, but the Foreign Office is refusing to release this information as they claim it could damage relations between France and the UK. Andrew was living in France with his French girlfriend. He was heavily medicated without choice, for a degree of paranoid schizophrenia. He wanted to return home to the UK but his partner prevented him from doing this. The day before he was found dead he told his partner that he wanted to return to the UK. Even in the weeks before he died he had spoken to family members about returning home. Andrew could talk to anyone, he saw everyone as a friend. In the UK he always enjoyed people’s company and this was denied to him in France. From the age of 12 he played chess and before and after he studied Maths at Leeds University he played at County level. He worked at PGL activity centres and loved his guitar. His company will always be missed. As a family we not only feel we have a right to this information, but that any family in the future who may go through similar circumstances in finding out about a loved one’s death in the UK or abroad should have access to all information in the case. The Foreign Office should only be able to withhold information if it’s in the interest of national security, not because they want to prevent embarrassment as seems to be the case in our terrible situation, a situation many families find themselves in. We therefore ask William Hague to please appeal to the Information Commissioners Office to rule in our favour and finally release to us all the details of Andrew’s death. We want him to stop allowing the Foreign Commonwealth Office to use the broad language in Section 27 of the Freedom of Information act to refuse to release information to grieving families who need to understand the details of their loved ones death. The UK government’s need to save face should not be put above its citizen’s need for answers during such a traumatic time.26,921 of 30,000 SignaturesCreated by julie sheppard
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Please Help stop the UK Governments plan to retroactively change the law!!Last year, student Cait Reilly and unemployed driver Jamieson Wilson, took the Tory led coalition to task over their controversial Workfare programme arguing that it was unlawful. Three Judges found that regulations under which most of the Tory led coalition back-to-work schemes were created are unlawful. The main issue is that the Tory led coalition lost this case and they lost because they failed to provide sufficient and legal information about Workfare to job-seekers. It is estimated that 231,000 people were originally affected by their decision and had their benefits sanctioned (ie stopped). The morality of the Workfare system is not being debated here (although flaws of the system are outlined below). This petition is about the abhorrent behaviour of the Tory led coalition that followed this decision and their decision to retroactively change the law. On 19 March 2013, a Bill was rushed through the House of Commons which will change the law (that they broke) retroactively thus enabling the Tory led coalition to avoid having to repay the money that they illegally took from job-seekers - an average of £550 per person. The issue here is threefold: Firstly, the Tory led coalition (assisted by Labour and Lib Dems) are trying to retrospectively change the law to protect themselves from their own flawed policies. By retrospectively changing the law they can ensure that no law has now been broken and thereby avoid having to repay those who they illegally sanctioned. This behaviour is morally repugnant and vile and cannot be allowed to happen. Secondly, there seems to be a complete media blackout on the story and the Bill was rushed through, the day before the Budget - one may argue in an attempt to bury it? Thirdly, the Workfare scheme is fundamentally flawed and has been shown not to be an effective tool to get unemployed back in to work. The problem is there are no jobs for people and the Tory led coalition is deflecting this fact away by demonising those looking for work such as Miss Reilly and Mr Wilson. There is plenty of evidence to show that workfare claimants are replacing real jobs. Since this WP came in, many retail giants and the Royal Mail have used workfare so they don't have to offer overtime to their existing workers. Asda recently put all their part-time staff on contracts which guarantee just 4 hours work a week. Many shops are run by workfare. This whole scheme is about exploiting labour - the workfare claimants are being exploited for free labour; the existing workers are being exploited by losing hours and pay; and we are all being exploited when what we buy is making profits for corporations which are using what is effectively indentured labour. People who are fortunate enough to be paid for their work are afraid of rocking the boat lest they be replaced. These schemes guarantee a cowed and compliant workforce, paid or not, who will be reluctant to unionise and unwilling to protest in case they lose their jobs. Meanwhile, taxpayers' money is being poured by the billion into the coffers of welfare-to-work companies and corporate profiteers, and Labour seem to be OK with this in principle. These are extremely important issues and cannot be ignored.12,405 of 15,000 SignaturesCreated by shari finch
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Defend the right to challenge the cutsMichael MacDonald was arrested on the night of the 16th February when he was at home alone looking after his young son. The arrest followed an incident earlier in the day when MacDonald, known by friends and colleagues as 'Don', engaged with Nick Forbes, the the Labour Council leader, in the street. 'Don' wanted to discuss with Forbes, the effects of the cuts to Newcastle's youth services, which the youth worker fears will have a devastating effect on the most vulnerable residents of the city. Don was not threatening to him. He didn't swear. He only tried to explain to Forbes, as a professional youth worker, the effects these cuts would have on the city's services. The actions taken by Forbes and the police are not what we expect of those who are meant to serve and protect the residents of Newcastle. It is important that situations involving the police as outlined above are not allowed to occur, which serve to intimidate and disturb the people of Newcastle who exercise their right to peaceful protest and freedom of speech. Although a minor offence, if charged Don would be left with a criminal record and there would a black mark against this hard-working and well respected community worker. Don was served a fixed penalty notice under Section 5 of the Public Order Act, but has returned this notice to the court and has stated his intention to fight the accusation. His arrest has serious implications for public protest and freedom of expression in Newcastle and nationally. We stand with him against this attack on the right to protest. The accusation is unjust, meant to intimidate and is preposterous. It is clear that: 1. A civil servant has used their authority to demand an arrest. 2. The police have removed a family man from his home in the middle of the night when he had sole responsibility for his six year old child, detained him for four hours on the basis of a minor charge, during which time he was encouraged to accept a fixed penalty fine for doing nothing more than exercising the rights we all have as residents of Newcastle. Initial signatories: John McDonnell MP Kate Hudson, national secretary Campaign for Nuclear Disarmament Jerry Hicks, Unite Grassroots Left Dot Gibson, National Secretary Pensioner Convention Bill Bowring, Haldane Society Socialist Lawyers Andrew Burgin, vice chair Coalition of Resistance1,081 of 2,000 SignaturesCreated by Stuart Robertson
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